Patient-reported measures to characterize perspectives of those at-risk or living with kidney disease. General focus overall on surveys that characterize disease-specific knowledge, self-efficacy oriented to kidney health, and self-care behaviors aimed to optimize kidney health. Following surveys were developed by Kerri Cavanaugh MD MHS and colleagues at Vandebilt University Medical Center. Copyrighted material is available free of charge to those individuals who have a full-time academic appointment at an academic or other non-profit research institution for non-commercial purposes.You may submit a request for permission to use these surveys. If you are interested in using the survey for commercial purposes, please contact email@example.com (TO ADD the commercial request form here)
- The Perceived Kidney/Dialysis Self-Management Scale (PKDSMS) was adapted from the previously validated Perceived Medical Condition Self-Management Scale. The PKDSMS, is a validated and reliable measure of CKD patient self-efficacy and supports the development of interventions enhancing perceived competence to improve CKD self-care.
- The Kidney Knowledge Survey (KiKS) is reliable and valid and identifies areas of poor kidney knowledge. The KiKS was developed to measure patient knowledge about many topics integral to self-care practices and prevention of CKD progression including basic terms, evaluation and diagnostic procedures, and risk factors of kidney disease.
- The Perceived Kidney Disease Knowledge Survey (PiKS) is a validated and reliable measure to evaluate distinct forms of patient perceived kidney knowledge. This is distinct from objective knowledge, and aligned with an individual’s preferences and self-efficacy.
- The Kidney Disease Behavior Inventory (KDBI) is a listing of behaviors important for kidney health self-care including at-home monitoring of vital signs or other biomarkers, nutrition, physical activity, medication taking, and engagement with health care. Versions for chronic kidney disease and dialysis are available.